History of Coming Home

We Were Unprepared
When we left the hospital we were not prepared to deal with the challenges of life at home. In our eagerness to get home we failed to realize how unprepared we were in caring for our daughter; especially her medical needs.

Then We Treaded Water
Once we got our heads above water, we realized it was time to tread. Treading was exhausting. She had multiple doctor visits, medications and changes to them, complex diagnosis' and the extensive information that goes with learning about them, and her vital statistics that appeared to be in constant flux. We needed to remember all of this information  at the drop of a hat. As time went on there was too much to keep track of; we could not go on this way forever.

We Started Organizing
Over time we noticed that we were answering lots of questions. Most of them were the same ones, day after day, week after week. What was her date of birth? What medications was she on? Did she have any allergies? Has she had any tests done if so when was the date and time? Who is her doctor? Almost like clock work, each doctor visit, every nurse phone call, medical and insurance forms, government agencies and organizations all requested the same information.

The Stress Was Decreasing
As we collected and organized our daughter's health information we noticed that we were not as stressed. We could now listen during doctor visits. Our organizer gave us a starting point to manage our daughter's health; while giving us peace of mind knowing that we had things under control.

Now We Collaborate
Instead of just listening we found that we were becoming more proactive in our daughter's care. We felt empowered to make more informed decisions and to work together as a partner with our daughter's medical team. Over time the Medical Organizer became our most important tool; making us confident, competent and secure in managing her care.

Penny Hanlon
www.cominghomeguide.com